The existence of rare diseases is often ignored or inattentive by the people. TFRD not only wants to share desolate stories of the patients to the public, but also to uncover the problems that exist in our society. Therefore, TFRD has been working closely with various organizations and through various media channels to raise the awareness of rare disorders to the general public. TFRD aims to help the society to better understand the rare disorders, provide proper cares to the patients, and recognize the importance of the issues.

　　Because rare disease is rare and hard to be cured, patients with rare disorders experience tremendous difficulties in life. Nevertheless, their diseases and hardships have made them the strongest fighters. Patients’ family plays an important role in supporting patients to fight their disorders. These patients are ordinary and yet extraordinary. Despite the challenges and pains in life, they overcome the obstacles and embrace their lives. We invite patients and families to give speeches to share their personal experiences. These stories might just be patients’ everyday life, but they could be life lessons to many of us, to help us to cherish and appreciate what we have.