Catastrophic Illnesses covered under National Health Insurance
In July 1994, the National Health Insurance Act was enacted, bringing medical care
insurance to the public mass. From that point forward, individual risks were covered
by the nation and the medical burdens for rare disease sufferers reduced dramatically.
Since the implementation of national health insurance, many patients have sought care
rather than give up on treatment. National health insurance alleviated the burden of
bludgeoning medical bills. However, rare disease patients are different. They still have
enormous medical bills even though their illnesses are incurable and they fit the definition
of catastrophic illness: Still, about 20-30% of rare disease patients are not eligible to receive
the catastrophic illness coverage and must handle part of the medical costs on their own.
In the long run, the costs are too taxing for the average family. TFRD recognized the
seriousness and urgency of the problem, and had been advocating the classification of
rare diseases under catastrophic illnesses through different channels. In 2002, the
Department of Health finally responded positively to our request. Today, rare disease patients
no longer have to shoulder the burden of medical costs on their own. Their right to receive
medical care is further ensured. Through the foundation's hard work, on August 23, 2002,
the Bureau of National Health Insurance formally announced that rare diseases are under
the category of catastrophic illnesses.
Patients with rare diseases are covered for most of their medical needs and no longer need to
renew their NHI cards. As for rare diseases that have not been reviewed or officially proclaimed
as rare diseases, the Department of Health promises to assist patients to receive benefits on
an ad-hoc basis. |