Home | Photo Gallery | Sitemap【Chinese】
   
News
於2021-02-26 11:02:39發表 (閱讀次數:304)
Rare Disease Day 2021

There are over 300 million people worldwide living with a rare disease. "Rare Disease Day" work towards the 6000+ rare diseases more equitable access to diagnosis, treatment, care and social opportunity.

The Rare Disease Day was first launched by EURORDIS and Council of National Alliances on February29, 2008, a purposeful choice of the date that occurs only once every four years. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. Recently, A United Nations General Assembly Resolution would promote global collaboration, national strategies and policies, as well as the inclusion of people living with a rare disease in the work of the United Nations and its agencies and bodies.

With increasing media reports and social attention, as many as over 100 countries and cities participated in the campaign in 2020. Taiwan Foundation for Rare Disorders (TFRD) is also encouraging the general public to help raise the profile of the Rare Disease Day. In response to the epidemic situation, TFRD hopes to raise more resources for families with rare diseases. The events organized by the TFRD this year is as follows:

Go to CHUAN LIAN, Show Your Care

TFRD invites everyone to go to the CHUAN LIAN market to donate change in the donation box or use PX Pay to donate welfare points. Then take a photo and share it with us on Facebook.
(1) Please "like" TFRD fan page! (https://www.facebook.com/TFRD9527/)
(2) Post your donation picture under this page (https://reurl.cc/L07DWL)
(3) Leave the message #全聯零錢捐愛從1開始 and tag 3 friends, you will qualify for the lucky draw

#Rare is many
#Rare is strong
#Rare is proud
#Show your support for the rare disease community with pride

Relevant information
Rare Disease Day official website: https://www.rarediseaseday.org/