Upcoming:"2009 International Conference of National Policies and Actions
on Rare Disease"
Monday 12 October 2009
Joyful Ballroom, B2, Sheraton Taipei Hotel, Taiwan
Taiwan's Rare Disease Control and Orphan Drug Act has been approved and practiced
for nine years since 2000.Looking at the results of the preventions of genetic disorders
in Taiwan, from planning, implementing, running to tracking, it is all because of the
cooperation between academic, medical and health organizations that we were able to
achieve what we have today. With the effort of the government and civil organizations,
Taiwan has established an organized health and social services system for the rare
disease patient. The 2009 International Conference of National Policies and Actions on
Rare Disease, held by Taiwan Foundation for Rare Disorders (TFRD), aims at sharing
and exchanging experiences with other countries with similar policies. As we approach
the 10th annerversary of both TFRD and the Rare Disease Control and Orphan Drug Act's
implementation, we hope to strengthen the interaction with other countries so that we have
more opportunities to share our own experiences and to learn from each other.
There are three main subjects in this conference:
(1)The medical and social welfare for rare disease patients;
(2) The healthcare for the rare disease patient under Taiwan National Health Insurance
Program;
(3) The formation and amendment on Orphan Drug regulation.
If you are interested in these issues and wish to register for the conference, please
pay close attention to our official website: http://www.tfrd.org.tw/english/
For more information, please contact us at: rp03@tfrd.org.tw.
Enclosure:
1.Conference Agenda (draft)
2.Registration Form |