Taiwan Foundation For Rare Disorders

Rare Disease Day

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

Rare Disease International (RDI)

Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases.
RDI’s mission is to be a strong common voice on behalf of rare disease patients around the world, to advocate for rare diseases as an international public health priority and to represent its members and enhance their capacities.

Asia Pacific Alliance of Rare Disease Organisation

The formation of the Asia Pacific Alliance for Rare Disease Organisations (APARDO) marks the opportunity for patient groups representing rare diseases and rare cancers to work together on common goals, facilitating research in the region, sharing resources and best practices, and collaborating on joint initiatives.

National Organization for Rare Disorders

The National Organization for Rare Disorders (NORD), a 501(c)3
organization, is a unique federation of voluntary health
organizations dedicated to helping people with rare "orphan"
diseases and assisting the organizations that serve them. NORD is
committed to the identification, treatment, and cure of rare disorders
through programs of education, advocacy, research, and services.

Eurordis-European Organization for Rare Diseases

A non-government organization supported by more than 200
member organizations across 24 different countries.
Eurordis is the only organization that represents the diversity
of all rare diseases and the needs of people living with these
diseases throughout all European Union member states.
They are dedicated to improving the quality of life of all people
living with rare diseases in Europe.

Canadian Organization for Rare Disorders (CORD)

CORD is Canada’s national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada.

New Zealand Organisation for Rare Disorders (NZORD

NZORD is a registered charitable trust (Charities Commission registration CC22512) that was set up in September 2000.
NZORD welcomes the full extended (patients, family, friends, clinicians and researchers) rare disease community as well as the common disease community by providing support, resources, advocacy and engaging in policy matters that affect the health of all New Zealanders.

Korean Organization of Rare Diseases (KORD)

There are 500,000 friends who have 110 different kinds of rare diseases in Korea.

ASrid

ASrid is a non-profit and sole organization for mutli-stakeholders
in Rare and Intractable diseases. ASrid is committed to providing the valuable
service/system for "connecting" and "creating" with/among them.

Hong Kong Alliance for Rare Diseases

Enhance understanding of rare diseases among patients, carers
and their families; promote self-help and mutual support and positive
attitude, towards leading a more fulfilling life.