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History
2009
Feburary
 Rare Disease Group Home establishes in Taipei county, with 3 patients and a helper live in it. Lodging and subsidy to maintain livelihood are provided.
 Rare disease unemployment press conference held to ask the public to help rare disease families whose financial burden increased due to global financial crisis.

March
 EMBA Alumni Association of National Taiwan University of Science and Technology (NTUST) holds a charity concert for rare disease patients, and donates NT?C400,000 to Taiwan Foundation for Rare Disorders.
 In cooperation with TFRD, ChangHua Christian Hospital at the opening ceremony of rare disease center offers tests for 5 rare diseases. TFRD subsidizes 50% of the testing fee in order to alleviate patients’ burden while seeking correct diagnosis.
 2009 rare disease recreational activities launches.

April
Enactment for TFRD Rare Disease Tissue Bank is established and passed by the TFRD board.
 Medicare Brochure of Williams Syndrome and Duchenne Muscular Dystrophy are published.

May
 A new way to help us with “7-11 ibon barcode donation” is established (exclusively available in Taiwan).
 2009 Rare Disease Family Support Courses is launched, with 9 different classes and 264 participants
 TFRD-central office holds a one-day course of Introduction to Rehabilitation with 34 participants
 TFRD holds a Teenage Interpersonal Relationship Camp for teenage patients to learn how to express themselves, communicate well, and expand their relationship with others.

June
 Two “Parenting skill and Loho Life” courses is held in TFRD-Taipei office, and 62 patients and families participate in the courses
 TFRD assists the establishment of Taiwan Epidermolysis Bullosa Association
 Rare Disease Resource Book IV is publishes, helping patients to find suitable long-term or resident care aides, assist machines or caregivers.

July
 TFRD holds the first Rare Disease children’s basketball camp.
 2009 rare disease patients’ summer camp with 300 people’s participation.
 TFRD Happy Summer Talent Class is held in TFRD Taichung branch office.
 Eazy Card Co., provides 1200 sets of tailored TFRD painting card for charity sale.
 TFRD patients are invited to the 2009 Chinese Professional Baseball League-Star home run contest.

August
 TFRD contracts with YongLin Healthcare Foundation on advocacy and education projects for people at high-risk of giving birth to children with rare diseases and relative projects on preventive medicine.
 Reacting to the damage caused by Morakot typhoon to rare disease families, TFRD gives home visits in Southern area and provided necessary help.

September
 “Love Brings US Here” concert is held at Taipei Grace Baptist Church.
 “Sound of Love” concert in celebration of the 10th anniversary of TFRD is held at Taiwan CPC Corporation conference room.
 TFRD’s broadcast program, Hsin Love World, starts broadcasting in Taiching FM100.7 station.
 “Ten Years of Color, Love knows no Disorders” patient’s Painting Exhibitions are held at Taipei Living Mall and China Medical University hospital in Taichung.

October
 Contracted with Bureau of Health Promotion Department of Health, TFRD carries out the Public Education for Rare Disease Project.
 TFRD, Taiwan Human Genetics Society, Taiwan MPS Society, and Genzyme Corporation co-held” The 2009 International Joint Symposia on Rare Diseases in Taiwan”.
 2009 International Conference of National Policies and Actions on Rare Disease is held at Taipei Sheraton Hotel.

November
 Colors of light’ painting exhibition is held by patient Pei-King, Chun-Wei and Yi-Chu.
 TFRD holds 2009 rare disease patients scholarship ceremony, with 305 patients awarded.

December
 TFRD attends the negotiation meeting held by Ministry of Interior on reimbursement for rare disease patients’ electronic fee.
 Documentary on Taiwan Foundation for Rare Disorders premieres on Channel Much.
 The TFRD Tissue Bank Program passes the Institute Review Board of China Medical University Hospital, and starts collecting human tissue.