|
 Medical Service Division
The Medical Service Division is mainly responsible for taking care of the medical needs
of patients, including genetic counseling, referring specimen abroad for diagnostic testing,
providing disease and orphan drugs information and visiting patients in hospitals. This
division is also responsible for the publication of education brochures and the promotion
for newborn screening by tandem mass sepctrometry.
Patient Service Division
The Patient Service Division consists of social workers, who provide direct service to patients
and their families, such as visiting patients, providing financial supports, holding supporting
groups and conferences, offering social welfare counseling, running Rare Disease Performance
Workshop, and distributing scholarships.
Research and Planning Division
The Research and Planning Division organizes the funding to academic research and thesis,
relevant publications including books, foundation magazines, newsletters and leaflets, and
maintaining TFRD official website. Also, this division is responsible for gathering official
resources, being the advocate for patients' rights and important policy issues, and developing
innovative service programs.
Public Relation Division
The Public Relation Division is in charge of getting in touch with the media, fund raising,
hosting large-scale activities, interviews, and advocating for advertisements and projects.
They are also responsible for public and campus publicity and patient activities, including
annual patients’ tours and Rare Disorder Foundation Scholarship Ceremony.
Administration & Management Division
In addition to administrative affairs, the Administration Management Divistion also manages
the donations received by the foundation. | 
Founder
Co-Founder
Chairman of Board
Executive Director
