Comparing the Concerns and Coping Strategies of Adolescents with OI patients to Their Caregivers

The purpose of this study is the concern caregivers issue with regards to strategies and coping with adolescents who have Osteogenesis Imperfecta.

The designed study was a descriptive qualitative approach. There was an in-depth interview with the 10 caregivers and 6 adolescents by a semi-structured interviews guide and the interview contents were

systematically analyzed using content analysis.

The results of the study through caregivers and adolescents have same concerns in medical treatment with "fracture repairs", "medical viewpoints", "diagnosing characteristics", "physical activities" and heredity." With respect to care and future outlook issues listed included: "daily care" and "future profession." Personal interactions were divided up into "discrimination", "interactions with teachers" and "interactions with families." Then they have different concerns in medical treatment with "surgical operation." With respect to care and future outlook issues listed included: "marriage and raising", "entering classes at schools", "conditions of entering schools", "fractures conditions", "outside activities" and "situations of learning at schools." Personal interactions were divided up into "interactions with classmates", "interactions with medical staffs", "interactions with others", "school resources", "social associated resources", "environmental resources", "governmental resources" and "economic spending." Furthermore, the coping strategy for the major caregivers and adolescents were the cognitive operation, the emotion response and the problem solving.

The finding of this research can be a care-guide book to help nursing staff understand this disease, provide relevant information, support caregivers and adolescent with Osteogenesis Imerfecta.