Analysis and Compare of Developments of TFRD and 5 Suppor Groups in the U.S.


Take a look at foreign experiences in the rare disorders related organizations, we will be capable of learning know-how within a short time and avoid potential obstacles, especially wehn other countries like the US are more advanced in rare disorder issues. Therefore, the research report is emphasized here to gather invaluable information and experiences on best practice from the five well-developed rare disorder patient groups in teh US. I hope it can bring the TFRD some new ideas on developing new service programs and empower people with broaden visions. 

Meanwhile, looking back for the past five years of developement of TFRD, some of its experiences, like advocacy, public relation and fundraising programs, can be regarded as invaluable foreign experiences for some other foreign countries in Asia too.