Analysis and Compare of Developments of TFRD and 5 Suppor Groups in the U.S.
Take a look at
foreign experiences in the rare disorders related organizations, we will be
capable of learning know-how within a short time and avoid potential obstacles,
especially wehn other countries like the US are more
advanced in rare disorder issues. Therefore, the research report is emphasized
here to gather invaluable information and experiences on best practice from the
five well-developed rare disorder patient groups in teh
US. I hope it can bring the TFRD some new ideas on developing new service
programs and empower people with broaden visions.
Meanwhile, looking
back for the past five years of developement of TFRD, some of its experiences,
like advocacy, public relation and fundraising programs, can be regarded as
invaluable foreign experiences for some other foreign countries in Asia too.