In order to strengthen rare disease family functions and help the whole family to face the lives living with rare diseases, TFRD has been arranging a series of family support courses since 2003. Topics include children’s education, communication between children and parents, emergency medicare, and life education. In 2008, TFRD explored topics such as life insurance and personal finance arrangements, medical resources, massage & yoga courses, and art therapy.
Insurance Plan Course: Introduction to several frequently-seen insurance products and the matters needing attention when purchasing. Illustrations were also made in the course in order to help the participants understand. Also, in order to maintain patient and caregiver’s life quality, caregiver’s insurance plan was also emphasized in the course.
Massage Course: The course was lectured and exemplified by an experienced massagist. Participants can learn to massage correctly and practice it at home to help release stress.
Medicare Course: Various but practical topics were included: “Rehabilitation at home, “Introduction to Assistive Technology”, “Doctor-Patient Relationship”, “How to Read a Medical report?”
Psychological Support Course: Participants were invited to share their thoughts and reviews about a movie. Exercise activities were also put into the course to help participants relax during the class.
Art Therapy Course: Through Eurythmy, participants can experience the relationship between rhythm and their body. Furthermore, the course helped participants to feel calmness.
Yoga Course: Through simple yoga courses, we hope to help participants learn to release stress. |
