For many rare disease patients, travelling is often just a dream. Together with volunteers, medical personnel and families of patients, in 2003, we conducted the first ever Firefly Family Summer Camp, which received great responses. Since then, TFRD has been providing various experience activities, one-day trips, and 2 two-day trips every year.
Despite of existing two-day trips for patients, in 2008 we held extra 5 experience activities for more patients. They got a chance to go to the baseball stadium to meet professional baseball players, to rice fields to experience traditional sowing, and to tea garden to taste various delicious tea. With more than 150 volunteer workers' help, 599 patients and their families have participated in the recreational activities.
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