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Board of Directors
Chairman of Board
Yuan-Tsong Chen
Directors of the Board
Chung-Teh Lee
Fuu-Jen Tsai
Min-Chieh Tseng
Robert Lin
Serena C.Wu
Shuan-Pei Lin
Wuh-Liang Hwu
Yuan-Cheng Tsai
Supervisor Auditor of the Board
Jerome Wu
Mei-Chin Chao
Philip Chen
Staff
Taipei Head Office:
There are 34 full-time staff, including 1 executive director, 2 deputy executive directors, 2 chief directors, 1 secretary, 7 social workers, 3 genetic counselors, 1 mental health service specialist, 2 medical service specialist, 4 research and planning specialists, 4 public relation specialists, 1 nutritionist, and 6 administrative secretaries.
Kaohsiung City Branch Office:
1 deputy chief director , 1social worker, and 1 genetic counselor.
Taichung City Branch Office:
1 chief director and 2 social workers
Medical Service Division
The Medical Service Division is mainly responsible for taking care of the medical needs of patients, including genetic counseling, referring specimen abroad for diagnostic testing, providing disease and orphan drugs information and visiting patients in hospitals. This division is also responsible for the publication of education brochures and the promotion for newborn screening by tandem mass sepctrometry.
Patient Service Division
The Patient Service Division consists of social workers, who provide direct service to patients and their families, such as visiting patients, providing financial supports, holding supporting groups and conferences, offering social welfare counseling, running Rare Disease Performance Workshop, and distributing scholarships.
Research and Planning Division
The Research and Planning Division organizes the funding to academic research and thesis, relevant publications including books, foundation magazines, newsletters and leaflets, and maintaining TFRD official website. Also, this division is responsible for gathering official resources, being the advocate for patients' rights and important policy issues, and developing innovative service programs.
Public Relation Division
The Public Relation Division is in charge of getting in touch with the media, fund raising, hosting large-scale activities, interviews, and advocating for advertisements and projects. They are also responsible for public and campus publicity and patient activities, including annual patients’ tours and Rare Disorder Foundation Scholarship Ceremony.
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Administration & Management Division
In addition to administrative affairs, the Administration Management Divistion also manages the donations received by the foundation
Our Address:
6F., No.20, Changchun Rd., Zhongshan District, Taipei City 104, Taiwan (R.O.C.)
Tel : 886-2-2521-0717
Fax : 886-2-2567-3560
E-mail :tfrd@tfrd.org.tw
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| Board of Directors |
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| Energetic TFRD staff! |
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