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7th IPWSO World Conference, 20 to 23 May 2010
Every three years International Prader-Willi Syndrome Organization (IPWSO), in conjunction with a host country, holds an international PWS conference. This year, the inte ....
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Upcoming: “2009 International Conference of National Policies and Actions on Rare Disease”
Monday 12 October 2009
Joyful Ballroom, B2, Sheraton Taipei Hotel, Taiwan
Taiwan's Rare Disease Control and Orphan Drug Act has been approved and practiced for nine years since 2000.Looking at the results of the preventions of genetic disorders in Taiwan, from planning, implementing, running to tracking, it is all ....
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Let’s Be Friends: Teenage Interpersonal Relationship Camp
To encourage teenage patients to have a healthy personality development and good social adaption, our foundation created a series of classes for patients 15~25 years old about social experience. We invited the City People Foundation to lead this courses; through group work, the teenagers learn how to express themselves, communicate well, and expand ....
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Embrace Your Dream and Fly:The Story of Jing-Yang Lin
Written by Lien-Ye Wang, teacher of painting class of Taiwan Foundation for Rare Disorders
I met Jing-Yang at the foundation’s painting class in 2008. I could never forget how the timid, shy, yet somehow still confident boy entered the classroom. Normally, I would be reluctant to leave the house with a little eye-swelling ....
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