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7th IPWSO World Conference, 20 to 23 May 2010
Every three years International Prader-Willi Syndrome Organization (IPWSO), in conjunction with a host country, holds an international PWS conference. This year, th ....
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The Power of Love- Seventh Annual Rare Disorder Foundation Scholarship Report
This year the Seventh Annual Rare Disorder Foundation Scholarship Ceremony which took place on November 28 reveals the recipients’ troublesome but persistent pasts. There were 305 recipients, suffering from a range of 70 rare disorders, and 1.9 million NTD worth of scholarship was issued.
The Power of Gr ....
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2009 International Conference of National Policies and Actions on Rare Disease Comes to a Completion
In the past ten years, the Taiwan’s push and support for rare disorder treatment, healthcare services and policy amendment in terms of the government, the foundation as well as other ongoing have taken shape. The implementation of Rare Disease Prevention and Orphan Drug Act in 1999 sets strategic directions to ensure rare disease patients&rsq ....
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“The sound of love” concert in celebration of the 10th anniversary of TFRD
Last year, in order to celebrate the 10th anniversary of the foundation, TFRD choir members from Taipei, Taichung and Kaohsiung held two concerts on September 4th and 5th at Taipei Grace Baptist Church and at Taiwan CPC Corporation conference room. Many of TFRD’s friends came and enjoyed the wonderful performance with our pati ....
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